Diagnosed with MS in 2020...I was diagnosed in 2020 after seeing a cardiologist a neurologist In 2021 I took a year of Coxen and so absolutely no difference. I moved down south and I...Reactions0reactionsComments7 repliesDiagnosis
With MS, Remember to Focus on the Needs of Others, Too...My husband, Dan, and I should be adaptive Zumba dancing at Evolution Fitness, our local fitness center, right now. The Latin-inspired dance class was supposed to give us a fun...Reactions0reactionsComments2 comments
Raw conversation about medical gaslighting ...This is an update thread, but I am not happy with my mood and wanted to start a different conversation with it. For those of you who don't recognize my...Reactions0reactionsComments9 repliesMental HealthAwarenessUndiagnosed/Seeking Diagnosis
Another diagnosis ...I’m feeling very overwhelmed at this point. I’m 38 yrs old living with not only MS, but neuropathy, vitamin D deficiency, memory loss of unknown cause, and today also told...Reactions0reactionsComments3 repliesDiagnosis
Loneliness ...Feeling alone as I walk through this life with MS. So many changes in less then a year....Reactions0reactionsComments3 repliesCopingAssistive DevicesDepression
What do you think about the study method at Tech U?...Hello everyone, I am passionate about sports and I would like to expand my knowledge, I am currently interested in specializing in Sports Nutrition and I am looking for an...Reactions0reactionsComments2 repliesDiet & NutritionTips & AdviceWork & Employment
Shattering the Myths of MS...It’s hard enough to understand multiple sclerosis (MS) when you’re the one experiencing it. It’s invisible and unpredictable, and it creates some pretty weird and unexpected symptoms. So it’s understandable...Reactions0reactionsComments9 comments
Am I Still A Musician If I Can't Play?...Multiple sclerosis (MS) has affected almost every part of my body. I have brain lesions in the periventricular white matter. What symptoms they cause is not clear to me. Most...Reactions0reactionsComments37 comments
My first heat wave ...I know that so many of you warriors have many years under your belts. You have persevered, and I have so much respect for you. I have been experiencing symptoms...Reactions0reactionsComments6 repliesCopingUndiagnosed/Seeking DiagnosisSleep
How do y’all sleep? ...I need some advice with how to fall asleep and sleep through the night. I have no problem laying down for a nap during the day but can’t seem to...Reactions0reactionsComments18 replies
Unusual head sensations...Sometimes I hear whooshes and clicks in my head after going to bed and trying to fall asleep. No pain with it, just annoying. It happens right when I start...Reactions0reactionsComments9 replies
Late Onset MS...I would love to connect with anyone who has received a diagnosis after 60. I’m 67....Reactions0reactionsComments0 repliesDiagnosis
Question...I have had M.S. for about 39 years now. This last year or so my trigeminal . If y nerve has been acting up. I have done a lot of...Reactions0reactionsComments0 repliesTips & Advice
My Epiphany: What I Realized Going From RRMS to SPMS...As life keeps going, there will be plenty of ‘ah-ha!’ or ‘lightbulb’ moments. Or the sudden realization of something you missed from a past event that you now see coming...Reactions0reactionsComments6 comments
Raising Children While Living with MS...I was diagnosed in October of 2023 after years of issues, I thought I would feel relief when I got a diagnosis. I didn’t know much about it and to...Reactions0reactionsComments2 comments
I MiSs dancing ...I was never good at dancing, but it was always an integral part of my soul. I would dance for every stressful moment that felt insurmountable, I would dance to...Reactions0reactionsComments47 repliesDiagnosisUndiagnosed/Seeking DiagnosisCoping
Who has utilized stem cell?...Stem cell work has come a long way. Looking for your experience with it. Plus, on a different aspect of this type of procedure, does it in any way affect...Reactions0reactionsComments0 repliesCommunity ResourcesHealthcare TeamInsurance & Disability
My Never Ending Story...So it all started in 2011 during a hurricane here in NC. The power had gone out, so I figured I'd go out to my car and listen to the...Reactions0reactionsComments5 comments
Started BRIUMVI IV infusions January 2024...So I was wondering if there are any other people here that get this IV infusion? Good bad opinions? I go in July for the last infusion this year and...Reactions0reactionsComments1 repliesCommunity ResourcesCoping
Heat...How do you deal with the heat? What can you do to keep your body cool?...Reactions0reactionsComments1 repliesCopingWeatherAwareness
