The Journey of Having This Disease...It is now March 2019 and I have signed up for the MS walk in St. Louis to spread By mdelp573 min readBookmark for laterReactions0reactionsComments7 comments
Why I Don't Appear Happy for You...I am not engaged, and I worry that I will be a burden on the man I love... By miapetitti4 min readBookmark for laterReactions0reactionsComments11 comments
New symptom?...I am on the MS Paleo diet so I eat well and have had great results with things like fatigue...Reactions0reactionsComments4 repliesSymptoms
I'm here too...I visited the neurologist, told him my story, and he nonchalantly said "you probably have MS or Lupus" I'm sitting here thinking... By rsmith4144 min readBookmark for laterReactions0reactionsComments3 comments
Does anyone use an app to log in their daily symptoms? If so, which would you recommend?...Reactions0reactionsComments2 replies
Beyond Surviving To Thriving: Online Interview Series for Thriving With MS...The guests in the series discuss both Western Medicine and alternative therapies for a traditional and holistic approach to living better with Reactions0reactionsComments2 repliesCommunity Resources
in dire need of a qualified personal care aide for 2hr/wkly...the topic is the whole story. i feel as if i was abandoned by the social worker on Reactions0reactionsComments2 repliesCaregiving
The Who I Used to Be...I raised them to have faith and be kind, to realize they may be the center of By asapcynthia2 min readBookmark for laterReactions0reactionsComments4 comments
Surgery with m.s...So I have m.s I got diagnosed almost a year ago and now I have to have surgery on Reactions0reactionsComments6 replies
Living on the River of Denial...I was diagnosed at age 33.I think I had it prior to that. My ex-husband (a... By kategrace1 min readBookmark for laterReactions0reactionsComments2 comments
Worst Days Ever Have Silver Linings Too...They showed me my MRI and the sheer number of lesions they pointed out, active and non-active indicated I... By ryan-porthouse3 min readBookmark for laterReactions0reactionsComments2 comments
Communicating with family members ...We're close as family, but 2000 miles apart. I'll take the good, the bad, and the ugly if you are willing...Reactions0reactionsComments7 repliesFriends & FamilyUndiagnosed/Seeking Diagnosis
What I Have Learned About Myself From Managing MS...There have been challenges but if I look for it, I see the ways that I always was taken care... By nancyw4212 min readBookmark for laterReactions0reactionsComments0 comments
PPMS and Ocrevus...I had a late life diagnosis of PPMS and am surprised at the ferocity of its progression....Reactions0reactionsComments10 repliesPPMS
Now I'm on Ocrevus do I need to be more careful?...My question for the collective mind is when you get to that point has anybody here changed the way Reactions0reactionsComments4 repliesCopingTreatmentHealthcare Team
How Do Veterans Affairs Benefits Work With MS?...I have a lumbar puncture this week to verify the presumed MS diagnosis....Reactions0reactionsComments1 repliesNewly DiagnosedHealthcare Team
Can neuropathy effect lungs/throat?...I’ve been wondering...can an ms hug be that focal? The squeezing feels like the size of an orange, but it...Reactions0reactionsComments5 replies
Help with Caregiving...Hello everyone, I really need advice. My mom is 36 years old and I am taking care of her....Reactions0reactionsComments1 repliesCaregiving
MS Hug...My last prois the MS hug. For me, it feels like a tight squeeze around my chest and abdomen. i cope...Reactions0reactionsComments1 replies