Let's Get Moving Giveaway...This giveaway is now closed. Thank you to everyone who participated! For this year's MS Awareness Month, we're focusing on movement, exercise, and celebrating the big and small wins of...Reactions0reactionsComments7 comments
Pons for MS patient...Hi - i am planning to pursue Pons treatment for Multiple sclerosis. Was wondering if anyone has some experience or feedback or suggestion. Thank you!...Reactions0reactionsComments2 repliesAssistive Devices
How to get around female bias to get diagnostic care...My fiancée and I have been to neurology at Barrow, Banner, and Honor Health in our little community of Phoenix, Arizona, for over 10 years, and her current treatment is...Reactions0reactionsComments1 replies
JCV positive and Tysabri...Hello lovely people, I got a call from the hospital on Friday letting me know that my last screening test for JC virus came back positive. My next appointment is...Reactions0reactionsComments5 replies
Surgery and multiple sclerosis...I am just wondering what, if any, have been folks experience with having to have surgery after your multiple sclerosis diagnosis. To date I have had three surgeries since my...Reactions0reactionsComments2 replies
help me help her...My cousin has MS and graves. The bad news is she doesn't eat and when she does its some kind of sugar or garbage. she doesn't exercise. But, this is...Reactions0reactionsComments9 repliesMedical MarijuanaDiet & NutritionTips & Advice
Thoughts on Inspiration...I don’t want to be an inspiration. I only want to inspire. If you exhibit visible MS symptoms then someone, somewhere, sometime may have called you an “inspiration.” I've been...Reactions0reactionsComments5 comments
Clinical trials ...How do you get started...Reactions0reactionsComments1 repliesResearch & Clinical TrialsCommunity ResourcesCost
“Go to Fatigue”...Living with an invisible disease of which fatigue is one of the most common and challenging symptoms is not easy. It’s a giant thorn in the side of almost everyone...Reactions0reactionsComments2 comments
Coping ...Exercise, eating the right foods. Lots of fruits and vegetables....Reactions0reactionsComments1 repliesResearch & Clinical TrialsDiagnosisDepression
I don't know what's going on........I have seen 4 neurologists in the past 2 years and no one has given me anything definitive, regarding a diagnosis. The second doc saw "Focal and confluent T2 signal...Reactions0reactionsComments8 repliesDiagnosis
Anyone using Kesimpta ...Hi I’m interested in anyone having side effects from Kesimpta. Have just started my first dose on Friday , it’s now Sunday night and I’ve had 3 days of terrible...Reactions0reactionsComments4 repliesSide Effects
Is this a relapse?...Hi, First time here. I was diagnosed with RRMS in 2007 and never had a relapse. Two months ago, I became seriously ill with the flu and, thereafter, had burning...Reactions0reactionsComments3 replies
Trials starting for CAR-T cells for MS...https://www.nature.com/articles/d41586-024-00470-5 It's for "re-setting the immune system" - Researchers have therefore turned to CAR T cells, and specifically to those that kill B cells carrying a protein called CD19. CAR...Reactions0reactionsComments3 repliesResearch & Clinical Trials
Fatigue ...I go to a neurologist in Seattle that specializes in MS. He tells me fatigue is not a symptom of MS! This is SOOO difficult for me to believe. You...Reactions0reactionsComments1 repliesFatigue
Timber! MS, Balance, Trips, and Falls...Is it just me, or does it feel like the fall after that frantic and wobbly “I’m losing my balance dance” happens in slow motion? Not really slow enough to...Reactions0reactionsComments14 comments
MS Treatment Options...How are you currently managing your MS? What treatments are you using, and how are they working out for you? ***There is no one-size-fits-all when it comes to MS management...Reactions0reactionsComments3 replies
PowerPro vibration plate...Anyone have experience using a vibration plate for fitness with mS?...Reactions0reactionsComments6 repliesExercise
Tracking How I Weather the MS Storm...I dropped $495 in early November to pre-pay for a season of snow plowing for Jennifer and I's driveway. It was a heck of a cost-savings deal knowing how winter...Reactions0reactionsComments1 comments
core temp...My name is Mike After arm weakness and other mild symptoms that are typical with progressive types of MS, a lumbar puncture finally confirmed MS. This was 2005 and there...Reactions0reactionsComments4 repliesTips & AdviceFatigueExercise