Even Though I Have PPMS, MS Is MS Isn’t It?...OK does it matter what type of MS I have? MS is MS, isn't it? I know you're wondering if PPMS has finally gotten to me cognitive-wise. Well, yes it...Reactions0reactionsComments66 comments
MS Life: How I Make Camping Easier and More Fun...During my last camping trip, I noticed a caravan of trailers in our loop. In one of them, a woman using a wheelchair frequently zoomed around the grounds between sites...Reactions0reactionsComments2 comments
M s symptoms ...I was diagnosed with m s last feburuary. I woke up one morning and my legs were like jelly and just couldn't walk. .my brain was telling my legs to...Reactions0reactionsComments1 repliesDiagnosisSymptoms
MS Hatred...I was diagnosed with PPMS about 6 years ago. I was in a state of denial for at least a year. Finally, I escaped denial realizing its not going away...Reactions0reactionsComments10 comments
MS Patients May Suffer a Gut Punch. Literally....For years I suffered from an irritable bowel that couldn’t make up its mind between constipation and the opposite of constipation. I would occasionally tell my wife, also an MS...Reactions0reactionsComments17 comments
Confusion! ...Good morning people :) So I haven’t been diagnosed and I know this isn’t a diagnosing platform but I was wondering about my symptoms. I ended up with a questioning...Reactions0reactionsComments2 repliesDiagnosisSymptoms
Taking care of a baby with one parent with MS...I’m reaching out on this forum because I need verification that I’m not crazy or that I am. Back story : married in 2008, lost my first with to GBM...Reactions0reactionsComments3 repliesAwarenessCopingCaregiving
Where Does My Time Go?...As I’m sitting on the couch, catching up on some local news, my attention is immediately pulled towards my suddenly noisy phone. My 4:09 PM alarm is going off. It's...Reactions0reactionsComments5 comments
Sense of taste...Who else have lost their ability to taste? I used to be a really good cook and I made food liked by hundreds at SCA events as well as at...Reactions0reactionsComments7 repliesDiet & NutritionFriends & FamilySymptoms
Progression without lesions...Hi, I am experiencing new symptoms- skin burning, buzzing, and a heavy, cold feeling in my throat and chest. I had a MRI last week and received a letter from...Reactions0reactionsComments5 repliesSymptomsCopingDiagnosisFatigue
It’s Okay Not to Be Okay!...The past month has been one of the most challenging times in my life. I struggled to keep it together. I found myself crying all the time, and I could...Reactions0reactionsComments3 comments
Symptoms ...Please help. I was diagnosed with ms last feburuary.i just recently started getting new symptoms I noticed that when people are talking to me it's taking along time for me...Reactions0reactionsComments10 repliesSymptomsDiagnosis
Severe itching...I sometimes experience severe itching at night. Usually my scalp, arms and trunk. Anyone else?...Reactions0reactionsComments4 replies
MS Comic: Mornings...Sometimes the most difficult part of the day could be the first thing you face - even if it's the seemingly simple act of getting out of bed. Whether you...Reactions0reactionsComments8 comments
Even Stars Can Be Sidelined By Depression...In addition to the many issues and lifestyle changes that can come with multiple sclerosis, symptoms revolving around our mental health can be especially problematic. Depression and anxiety are extremely...Reactions0reactionsComments6 comments
Ocrevus...My neuro says I am not a candidate for this. I don't know if it's my age 66 or if I am too far along..34 years. Two limbs affected so...Reactions0reactionsComments9 repliesTreatmentPPMS
So, What’s New on the MS Research Horizon?...Over the last few years, there have been several new MS medications and treatments approved by the FDA. Currently, there are fourteen main (maybe more) medications available for Relapsing-Remitting MS...Reactions0reactionsComments9 comments
Abnormal SSEP and burns in legs...Hi all, For a muscular pain reason, I went to see a neurologist who performed a set of exams (NCS and EMGs) as well as a quick SSEP (legs) -...Reactions0reactionsComments5 replies
Eyelids Close Involuntarily? Mine Too!...At one o’clock in the morning, I wake in my recliner. I struggle to open my eyes. Only my right eyelid cooperates. The left one stays right where it is...Reactions0reactionsComments43 comments
“Normal” brain MRI, while checking every box?...I’m on a journey to find out what’s happening with my body. I have had blood work done and I am awaiting results to rule out vitamin deficiencies, Lupus, Lyme...Reactions0reactionsComments1 replies
