Startle response to sounds -- anyone else have painful after-effects?I have a severe case of sound sensitive myoclonus (exaggerated startle), similar to what others have reported. My startles often trigger painful head spasms, fatigue & disorientation for hours, sometimes...Reactions0reactionsComments4 replies
Any tips for getting others to understand?After years of wondering what was wrong with me, I was finally diagnosed with MS in January. I am still trying to wrap my head around this - and am...Reactions0reactionsComments3 replies
Dealing with toxic relatives... relatively speaking. Help!I received my diagnosis this week. I reached out to my sister and mother who were extremely negative. They said it was all in my head (actually it’s all in...Reactions0reactionsComments2 replies
How does heat and humidity affect you?I'm moving to Southern California and want best temperature for MS. Any suggestions?...Reactions0reactionsComments2 replies
Anyone out there stopped DMTs?I’m new to site! Very confused. Dr suggested stopping DMT, said my MS mild but I have deficits on left side which are perm. Not sure stopping DMT right thing...Reactions0reactionsComments2 replies
Is problems swallowing and breathing part of MS?My throat feels like it is closing up and the front of my face is that numb tingling feeling....Reactions0reactionsComments7 replies
Do your family or friend's truly understand your MS condition?I have a friend who continually makes rude remarks to me, for instance: How come you are not up at 6:00 a.m.? In the morning? Well, I don't function well...Reactions0reactionsComments14 repliesCoping
Diagnosed at 70!!Finally have answers to why my legs are so tired the past 12 yrs. I have PPMS. My legs feel like 1000lb weights. My balance is terrible. If i excerize...Reactions0reactionsComments2 repliesCoping
Loss of fine motor skills left side - will I recover?I have MS relapse and 6 months ago I loss of fine motor skills left side. My question is will I recover and have full use of my left side...Reactions0reactionsComments2 replies
How significant is lesion size because I am a little freaking out?So had the MRI's done yesterday Brain Cervical Thoracic with and without contrast. I have lesions in all those lovely places. The brain didn't show any change, Thoracic no new...Reactions0reactionsComments2 replies