Navigating the "How Are You?" Question With MS...It's a simple question: "how are you feeling?" But when you're living with MS, the answer is anything but simple. It's complicated and forever fluctuating. So how do you give...Reactions0reactionsComments25 comments
Ampyra...I've read the early posts on Ampyra. My neuro started me on it two weeks ago. So far, no change. It apparently takes 6 weeks to have an effect. Meanwhile...Reactions0reactionsComments0 repliesTreatment
Working Out The MS...I was 22 when I got my RRMS diagnosis and faced a number of new health issues. I found it hard to continue my active life. Running and jogging had...Reactions0reactionsComments2 comments
A Day Without the Shadow of MS: A Dream of Peace and Liberation...For many, a new day brings the promise of possibility, of opportunities waiting to be seized. But for those of us navigating the labyrinth of multiple sclerosis (MS), each dawn...Reactions0reactionsComments1 comments
I'm kicking myself today ...Both literally and physically (but unintentionally with the physical). I've been journaling hard for the past couple of months as I count down to my MRI in two days. And...Reactions0reactionsComments6 repliesCopingDiagnosisSymptoms
Internal vibtarions...Hi everyone. I have not been diagnosed yet but am going in for a brain, thoracic spine, and cervical spine MRI this week. Has anyone ever gotten internal vibrations and...Reactions0reactionsComments1 replies
How do you plan on spending the Memorial Day holiday?...Holidays can be a wonderful time filled with joy, family gatherings, and special traditions, but they can also be quite stressful, especially when dealing with MS. How do you typically...Reactions0reactionsComments4 replies
Eyes after Cataract surgery...8 mos ago I had my cataracts removed and I thought, wow! I will have perfect vision, NO,,,, at times I can't focus and get double vision. MY MS doctor...Reactions0reactionsComments1 repliesSymptomsCoping
Isolation and MS...I recently noticed that I feel very isolated since my diagnosis, does anyone else feel this way and how do you cope with it? I mostly noticed because I think...Reactions0reactionsComments4 repliesCopingFriends & FamilyNewly Diagnosed
Does spraying water in mouth help ...Hi I would like to know if spraying water in the mouth of a person with ms helps stop drooling and possibly adding other flavors to the water...Reactions0reactionsComments1 replies
Does Mayzent work for PPMS?...My first symptoms started about 18 years ago (I’m 68), and even though I saw about 6 or 7 neurologists, I was diagnosed with Primarily Progressive MS only 3 years...Reactions0reactionsComments1 replies
I’m Seeing the Benefits of Aging, Bifocals, and MS...“Just read me the letters from the lowest row you can see,” the ophthalmic nurse instructed. “You mean there are letters in front of my eyes right now?” I questioned...Reactions0reactionsComments3 comments
How many people are absolutely fed up with the unhelpful and unwanted advice???...All I want is to be heard. To be able to say what is making me struggle today. And I'm so tired of the advice. My muscles are jumping. It's...Reactions0reactionsComments6 repliesCopingFriends & FamilyMental Health
Not a symptom but......It's not a symptom but after 21 yrs with RRMS, I now am having to deal with skin cancer. Still need to get to the dermatologist that's going to be...Reactions0reactionsComments1 replies
The Look Of Awareness...The purpose of awareness periods are to set aside time to bring recognition to social issues or health conditions, such as multiple sclerosis. During these times, those affected by one...Reactions0reactionsComments0 comments
Clothing question for the ladies ...I have found that all of my clothes are super uncomfortable and trigger my symptoms really bad. I was able to find pants to replace my leggings, and replacement tops...Reactions0reactionsComments2 repliesSymptomsWork & Employment
Mobility Issues...Mobility and neuropathy issues from MS can affect both the arms and legs. What has been your experience with mobility issues? How have you managed them?...Reactions0reactionsComments39 repliesSymptoms
How do you know if your symptom is MS fatigue? ...I have several mental health issues including depression additionally to having been diagnosed with MS in January 2024. I have no real idea how this MS stuff works. But I've...Reactions0reactionsComments1 repliesDepressionDiagnosisFatigue
Those Pesty Never-Ending MS Symptoms...I can only imagine the thoughts racing through your mind thinking about all the pesty MS symptoms you deal with. Not to mention the severity, length of time, and type...Reactions0reactionsComments61 comments
What is the reason ...I can physically drive, BUT where did this sudden fear that every car is is to close too fast too loud too scary Come from??? I need to get out...Reactions0reactionsComments4 repliesDepressionTravel
