My "MS Emergency Kit:" Navigating Life With MS When You’re Not Feeling Your Best...Living with multiple sclerosis (MS) is like living in an area prone to earthquakes. Earthquakes are notoriously unpredictable; you might feel some tremors before they hit, but most of the...Reactions0reactionsComments5 comments
Grief has no time frame ...Grief. Is such a powerful emotion, and is a powerful driving force. It cumulates and morphs and is unpredictable. There's no rhyme or reason to when grief rears up from...Reactions0reactionsComments7 replies
Numbness & new medication...Hi, I have been diagnosed with MS since 2009. I had been on no medication for the first 10 years until I had went for an mri and there were...Reactions0reactionsComments1 repliesDiagnosis
How does the new $2,000 prescription drug plan work...How does the new $2,000 max out of pocket Joe Biden plan work?...Reactions0reactionsComments10 replies
Paying for MS Medication and IRA...My wife has had multiple sclerosis for 25 years. Over there 25-year period, we've gone from three medications to well over a dozen. Unfortunately they all seem to be the...Reactions0reactionsComments2 repliesCost
Fatigue...Sometimes I feel guilty for complaining when some are so much worse off than me however this is my story. I used to work full time as a nurse and...Reactions0reactionsComments7 replies
Hypermobility and MS with or without perimenopause ...Good Afternoon! This question is mainly for my fellow ladies with MS, but men with hypermobility please feel free to chime in. How do you all manage your hypermobility and...Reactions0reactionsComments2 repliesTips & Advice
How Well Do You Know the MS Community? Take Our Quiz...We’re excited to share the results from our 2024 In America survey, where more than 4,500 people living with multiple sclerosis have opened up about their experiences. Get ready to...Reactions0reactionsComments10 comments
I've been unintentionally torturing myself ...The hubby and I started during the last year watching Survivor. Like binge watching on streaming. And we've watched a lot! I enjoy it, I am surprised at how much...Reactions0reactionsComments7 repliesUndiagnosed/Seeking DiagnosisCoping
I'm not sure if I'm having a flare up...So I've been having some weird symptoms for about 5 days now. My legs are weirdly stiff all the time and if I walk for longer than 2 minutes it...Reactions0reactionsComments11 repliesCopingHealthcare Team
Who else falls asleep at the drop of a hat?...This only seems to happen when I’m sitting on the sofa or in my chair. I never actually feel myself getting sleepy; instead, I suddenly find myself waking up with...Reactions0reactionsComments7 repliesSymptomsFatigueSleep
It's my anniversary! And I'm doing my best......I finally married the love of my life last year, November 13, 2023. We had been together for over a decade, and after I lost my father and took care...Reactions0reactionsComments9 repliesUndiagnosed/Seeking DiagnosisDiagnosisCoping
The Game of Shifting Expectations...We all set expectations for ourselves: expectations of when we will accomplish something, expectations that we will remain healthy, or expectations of how a meeting will go. Whether they are...Reactions0reactionsComments16 comments
Managing loneliness....The most distressing symptom I deal with on a nearly daily basis is ‘loneliness’. I have a loving and caring wife who is amazingly attentive. Our children visit us several...Reactions0reactionsComments29 repliesSymptomsFriends & FamilyCoping
Clene Nanomedicine - CNM-Au8 REPAIR-MS Expanded Access Protocol - Treatment update...Clene Nanomedicine - CNM-Au8 Expanded Access Protocol - Treatment update 2.5 years ago, I was in the Clene REPAIR-MS trial at the University of Texas Southwestern. I wrote about my...Reactions0reactionsComments1 repliesTreatmentResearch & Clinical Trials
The Fatigue of MS Which Passes All Understanding...It is hard to explain to people the impact of fatigue. I call it a "tsunami of fatigue" which leaves me treading water in an endless ocean, just keeping my...Reactions0reactionsComments3 comments
How MS Affected My Life...I was diagnosed with multiple sclerosis back in 1996. I was working in a hospital in Greenwich Village, New York, and was jumping off the walls, receiving the wrong diagnosis...Reactions0reactionsComments1 comments
