MS and Cog Fog...What Was I Thinking About?...I am sure most, if not all, of us have enjoyed that moment of “what was I going to do?" or "what was I thinking?” That puzzled look, scratching your...Reactions0reactionsComments28 comments
The Mystery of Missing My Medication...A few days ago, I was sitting around my house and realized that I wasn’t feeling quite right. My head felt fuzzy and I was markedly more tired than I...Reactions0reactionsComments68 comments
Does Medicare pay for Ocrevus?...Does medicare pay for Ocrevus? Is it difficult to get medicare to approve Ocrevus? I have been stable on Ocrevus for 3yrs now. I am trying to get SSDI to...Reactions0reactionsComments1 repliesCostInsurance & DisabilityDepression
Can you get SSDI taken away if approved?...I am battling getting SSDI…. And i just saw another post that someone got their SSDI taken away after being on it for 3yrs…. Is this even possible? This is...Reactions0reactionsComments8 repliesDepressionInsurance & DisabilityCost
How do people with MS who need financial help but dont qualify for it actually make it?!?! I am drowning in medical debt and rising insurance costs… ...I am terrified of my future with MS…. Everything keeps going up…. I need financial help but i dont fit any “box”…. The MS society has no money to help...Reactions0reactionsComments5 repliesCaregivingCostDepression
SSDI taken away!?...My daughter was approved for SSDI in 2019. She just had her 3-year review, and they took away her benefits! She is disabled not only by MS but serious mental...Reactions0reactionsComments10 repliesInsurance & Disability
Cat Feeders to the Sleep Rescue...Tips, tricks, and tools to make life easier are always popular. Here’s my latest idea to share. My husband and I have two sweet kitties. They are 14 years old...Reactions0reactionsComments4 comments
You Had One Job: When Healthcare Gets in the Way of Healthcare...Before I start, I just wanted to make it clear that I am pretty much just venting in this post. Maybe you can relate? (I hope not). Maybe this will...Reactions0reactionsComments23 comments
Millennials Living with MS...To the millennials living with MS on the site, we want to know: How has MS impacted your life?...Reactions0reactionsComments0 repliesTips & AdviceCoping
What I Thought Was Eczema Turned Out to Be Shingles...Editor’s Note: This article was written by Patient Leader Cora Lyn Sears and originally appeared on our partner site AtopicDermatitis.net. She describes her experience of having shingles while living with...Reactions0reactionsComments0 comments
HSCT Part 4: The Treatment Itself...Preparations for my trip to Mexico caused so many emotions: worry, excitement, anxiety, and a feeling that I just had to take a breath and get it over with. My 'Hail...Reactions0reactionsComments6 comments
Loneliness ...I've had ms since April 1989. I'm 55yrs. old & was born walking. I went through all the early stages of Ms to now I'm bedridden & can freely use...Reactions0reactionsComments2 repliesPPMSSPMS
Uhtoff syndrome as initial symptoms??...Hello, Im french so please be Indulgent with my English :) Im 34 yrs old woman..it seems I have multiple symptoms that make me think of MS…especially Uhtoff syndrome. Everything...Reactions0reactionsComments6 repliesDiagnosis
Ocrevus 2nd dose...I was diagnosed 16 years ago and had very few issues for the first 11 of those years. I have been told I was RRMS, SPMS and PPMS from several...Reactions0reactionsComments8 repliesTreatment
Ongoing tests ...Good morning everyone I am 33 years old and I'm terrified I have MS seeing my doctor again to get neurology referral. My grandmother had it and I've had the...Reactions0reactionsComments1 replies
Put Your Best Artwork Forward With MSAA’s Art Showcase...Get your art materials ready! The Multiple Sclerosis Association of America (MSAA) is now accepting submissions for the 2023–2024 Art Showcase! Since 2009, MSAA has held an annual Art Showcase...Reactions0reactionsComments7 comments
Gold Nanocrystal Remyelination Phase 2 Clinical Trial Update - Four months after last dose...Below is an update on my situation since my last posting on October 4 which can be found here: https://multiplesclerosis.net/forums/gold-nanocrystal-remyelination-phase-2-clinical-trial-update-three-months-after-last-dose I have experienced no further degradation in my MS symptoms...Reactions0reactionsComments4 repliesResearch & Clinical TrialsAwarenessTreatment
Covid...This is not directly MS related but I feel it's important enough for this group to see. https://abc7news.com/covid-long-haul-study-aging-faster-after-organs-kidney/12340213/...Reactions0reactionsComments1 replies
Serving Others Despite MS...One thing I genuinely hope to have in life is a servant's heart. To me, having a heart of service means feeling excited when I see others flourish. To feel...Reactions0reactionsComments11 comments
Undiagnosed Nighmare...I started having right lower weakness and fasciculations in my calves. I had to stop working, my balance was really bad and I could not walk far at all. My...Reactions0reactionsComments4 repliesAwarenessDiagnosis
