If It All Changes Tomorrow...For me, MS appeared overnight. I went to bed worrying about an upcoming exam and was none the wiser that this night marked the spot for a considerable shift in...Reactions0reactionsComments13 comments
PPMS and Ocrevus...I had a late life diagnosis of PPMS and am surprised at the ferocity of its progression. I'm starting Ocrevus next week and am wondering if anyone would be willing...Reactions0reactionsComments10 repliesPPMS
Your Anger Can Be a Gift...Living with multiple sclerosis can be an emotional rollercoaster. Anger is a common sentiment with complex causes that an individual fighting an incurable disease can typically experience. This is a...Reactions0reactionsComments6 comments
Gold Nanocrystal Remyelination Phase 2 Clinical Trial Update - Three months after last dose ...Below is an update on my situation since my last posting on July 13. https://multiplesclerosis.net/forums/gold-nanocrystal-remyelination-phase-2-clinical-trial-update-end-of-treatment-finally-concluded It’s been about three months since the conclusion of the Clene Nanomedicine REPAIR MS Phase...Reactions0reactionsComments4 repliesResearch & Clinical TrialsAwarenessTreatment
Disease-Modifying Therapy: To Continue or Not to Continue Is the Question...Wow, I can see that look of, “Are you crazy?” And I agree with our younger generation asking this question, although, this is a valid consideration for us older folks...Reactions0reactionsComments8 comments
Cooler Temperatures and MS Symptoms...Do you notice with cooler or cold temperatures, your MS symptoms seem to worsen? If so, how do they worsen? Do you feel them more frequently, more intensely? Are there...Reactions0reactionsComments147 repliesWeatherSymptoms
New symptom (again)...I was wondering if any of my MS warriors have or had this sensation. Without warning, I'll get this very warm feeling around my head. It feels like warm water...Reactions0reactionsComments27 repliesSymptomsSide EffectsUndiagnosed/Seeking Diagnosis
How Did I Even Get Here and What's Next...On my 50th birthday, which was 2 years ago almost to the day. I felt like I was on top of the world! I spent it backcountry camping at Lake...Reactions0reactionsComments19 comments
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A Service Call to Dog Lovers With MS...There was a reason why I named him Bean. In the award-winning book Ender’s Game, there was a character named Bean. This character was genetically modified to be incredibly smart...Reactions0reactionsComments54 comments
I feel angry most of the time or tired...Ive always been a little grumpy at times, but these days i feel angry/annonyed. Just getting out of my chair again to grab a drink/cook dinner/shower/feed the dog can make...Reactions0reactionsComments3 replies
"I think it's shingles or MS."...January 26th 2001 I went to the doctor because my right leg was numb. After some time he said that I have 1 of 2 things: MS or shingles. It...Reactions0reactionsComments1 repliesDiagnosis
Another Day, Another Diagnosis: Cervical Dystonia and MS...I have dealt with essential tremors for as long as I can remember. They began in my hands, but my hand tremors lessened in college, and I began noticing an...Reactions0reactionsComments17 comments
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COVID and ms...I recently tested positive for covid and I have pprms and they put me on some medication to take for like 5 days but I'm really concerned and I'm really...Reactions0reactionsComments4 repliesCoping
OMG Moments...So many indignities, so little time. MS is comical at the best of times. My gait resembles a drunken Roomba, my speech is stunted and choppy, and everything in my...Reactions0reactionsComments5 comments
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PPMS...Hi everyone. I am new to this group. I was diagnosed with RRMS in 2017 and informed that I now have PPMS. I have been on Ocrevus for 5 years...Reactions0reactionsComments1 repliesPPMSCopingTreatment
An Advocate Without a Ribbon...This past March was another multiple sclerosis awareness month of lost opportunities. Each year I have lofty goals to participate in every activity available. I want to support my chronic...Reactions0reactionsComments9 comments
Happiest Day Turns Into the Worst...It was back February 23, 2010. I was admitted to labor and delivery, and February 24th at 12:30 am my son came into this world via emergency C-section! I wasn't...Reactions0reactionsComments0 comments