Still chasing a diagnosisHi to all, I am about 16 years into living with undiagnosed MS…I think. And my PCP thinks. Other Drs think so when they look at my medical history and...Reactions0reactionsComments7 comments
Learning all I can!Hello. I am a newbie. I was diagnosed in April. I really didn’t know what was wrong with me. I knew I was taking care of my grandmother who died...Reactions0reactionsComments3 comments
What not to do before and what to do after your MS diagnosis?How did you deal with your first signs of what you now know was MS? Just another day of getting older is how I handled it day after day for...Reactions0reactionsComments14 comments
UmbrellaThrow it all in the air Throw it all at a wall The various symptoms Come raining down Umbrella Umbrella You are too small Umbrella Umbrella Will you break the...Reactions0reactionsComments2 comments
You have MS, but you look so healthy!You have MS, but you look so healthy! Yep, I know you have heard this before and I know the thought going through your mind. As an MS warrior, like...Reactions0reactionsComments10 comments
“This is the story all about how my life got flipped turned upside down.” (credit to DJ Jazzy Jeff and The Fresh Prince.)This is a story of how I received a diagnosis, fighting for yourself, questioning yourself, and ultimately growing as a person. All throughout this journey that I am still on...Reactions0reactionsComments2 comments
MS, Is That You?The best description I can give to people of what living life with MS is like would be to imagine if Satan were your conjoined twin. The alarm clock goes...Reactions0reactionsComments8 comments
How Can We Make the MS Journey a Little Bit Easier?Like you, I have asked myself this very question time and time again. I have volunteered my medical data to research projects hoping to ease others' journey. Joined Facebook groups...Reactions0reactionsComments2 comments
You can be optimistic with MS.I’m an optimistic person, I always have been. People wonder how someone who has PPMS and is bedridden be optimistic? After all, it’s incurable. I am also a person who...Reactions0reactionsComments3 comments
Personal TriumphMy father passed away on September 22, 2020. It was really hard. My sister is a remarkable lady. Sitting at my kitchen table we are a mess. After arrangements were...Reactions0reactionsComments2 comments
The life we face with progressive MSBefore we get the MS diagnosis, we know something is wrong with our bodies but don’t have the answers so we face confusion and fear of the unknown. Then we...Reactions0reactionsComments14 comments
Where's my memoryUpon this last year I've noticed my memory started getting worse.Not trying to cut people off,but if I don't say when it comes to me its gone and may or...Reactions0reactionsComments6 comments
When is it enough?I was diagnosed with MS Relapsing in 2015. I didnt know what was going on my feet where stiff and red im a nurse so I assumed that I had...Reactions0reactionsComments4 comments
How I got used to using a needle for my DMTI’ve had Multiple Sclerosis for more than forty years, and I can tell you that I see a real difference between the twenty two years I spent without using a...Reactions0reactionsComments12 comments
My multiple "silly beggar's"Had ìt before i was 35. Diagnosed; in my late 50's; Secondary Progressive. Survived. 3x pneumonia, covid, streptococcus. MRSA im in a powered chair. and my Guy is still by...Reactions0reactionsComments1 comments
The don’t ask, don’t tell symptomLet’s talk sex Or, the don’t ask, don’t tell symptom. Ok, now that I have your attention. I wanted to talk about one of the more rare symptoms of MS...Reactions0reactionsComments6 comments
Hurting all of the TimeMy wife was diagnosed with M years ago. It took a long time of suffering before the diagnosis. She has moved from RRMS to SPMS. She is in pain 100%...Reactions0reactionsComments11 comments
MS: Mighty StrengthHi. My name is Dorcas. I was diagnosed with MS in 2003. With all the aches, pains and aggravating symptoms, I am still standing. I didn't ask for this one...Reactions0reactionsComments0 comments
Ten year mystery solved!August 2010. It was a Saturday. I was sick with what I thought was a 24 hour bug. Both ends going continually and a massive headache. Sunday felt like ‘the...Reactions0reactionsComments7 comments
Susan’s MS Experience (Age 66)On Thursday, August 26, 2004, I woke up with a slight pain above my right eyelid along with blurriness in my right eye and a headache. I called our family...Reactions0reactionsComments1 comments